Milne, Richard http://orcid.org/0000-0002-8770-2384
Morley, Katherine I.
Almarri, Mohamed A.
Anwer, Shamim
Atutornu, Jerome
Baranova, Elena E.
Bevan, Paul
Cerezo, Maria
Cong, Yali
Costa, Alessia
Critchley, Christine
Fernow, Josepine
Goodhand, Peter
Hasan, Qurratulain
Hibino, Aiko
Houeland, Gry
Howard, Heidi C.
Hussain, S. Zakir
Malmgren, Charlotta Ingvoldstad
Izhevskaya, Vera L.
Jędrzejak, Aleksandra
Jinhong, Cao
Kimura, Megumi
Kleiderman, Erika
Leach, Brandi
Liu, Keying
Mascalzoni, Deborah
Mendes, Álvaro
Minari, Jusaku
Nicol, Dianne
Niemiec, Emilia
Patch, Christine
Pollard, Jack
Prainsack, Barbara
Rivière, Marie
Robarts, Lauren
Roberts, Jonathan
Romano, Virginia
Sheerah, Haytham A.
Smith, James
Soulier, Alexandra
Steed, Claire
Stefànsdóttir, Vigdis
Tandre, Cornelia
Thorogood, Adrian
Voigt, Torsten H.
Wang, Nan
West, Anne V.
Yoshizawa, Go
Middleton, Anna
Funding for this research was provided by:
Wellcome Trust (206194)
Article History
Received: 20 October 2020
Accepted: 4 May 2021
First Online: 25 May 2021
Declarations
:
: The online survey is fully anonymous. Participants are informed that their consent is given when they choose to click off the landing page and start answering the questions. On the landing page, the purpose of the project is explained as well as what participation involves, participants have a choice at any stage within the survey, to stop answering the questions and withdraw. The online project is physically based at the Wellcome Genome Campus with all data collected and stored in encrypted files at the Wellcome Sanger Institute in Cambridge. As part of the conditions of research delivery at this research institution, the project passed ethical review by the Human Materials and Data Management Committee of the Wellcome Sanger Institute (Registration Number: 16/029) as well as legal review to ensure that it was compliant with ethical and legal standards for participant involvement, data collection and storage. This ethics approval was sufficient to cover recruitment into the online survey for most of the collaborators attached to the project; with the exception of Australia, whereby the University of Tasmania required an additional local IRB process to be completed plus their own separate consent form adding onto the landing page of the survey for Australian participants only. The study was approved by the Tasmanian Social Sciences Human Research Ethics Committee on the 5th of July 2017, reference number H0016682. This research conformed to the Declaration of Helsinki.
: Not applicable
: KM, DM, QH and SA declare no competing interests associated with their affiliations. The remaining authors declare no competing interests.