Crow, Rebecca A.
Hart, Kimberly A.
McDermott, Michael P.
Tawil, Rabi
Martens, William B.
Herr, Barbara E.
McColl, Elaine
Wilkinson, Jennifer
Kirschner, Janbernd
King, Wendy M.
Eagle, Michele
Brown, Mary W.
Hirtz, Deborah
Lochmuller, Hanns
Straub, Volker
Ciafaloni, Emma
Shieh, Perry B.
Spinty, Stefan
Childs, Anne-Marie
Manzur, Adnan Y.
Morandi, Lucia
Butterfield, Russell J.
Horrocks, Iain
Roper, Helen
Flanigan, Kevin M.
Kuntz, Nancy L.
Mah, Jean K.
Morrison, Leslie
Darras, Basil T.
von der Hagen, Maja
Schara, Ulrike
Wilichowski, Ekkehard
Mongini, Tiziana
McDonald, Craig M.
Vita, Giuseppe
Barohn, Richard J.
Finkel, Richard S.
Wicklund, Matthew
McMillan, Hugh J. Jr
Hughes, Imelda
Pegoraro, Elena
Bryan Burnette, W.
Howard, James F.
Thangarajh, Mathula
Campbell, Craig
Griggs, Robert C.
Bushby, Kate
Guglieri, Michela
Funding for this research was provided by:
National Institute of Neurological Disorders and Stroke (NIH/NINDS NS061799)
Article History
Received: 6 April 2017
Accepted: 12 April 2018
First Online: 10 May 2018
Ethics approval and consent to participate
: This manuscript does not directly contain human data; however, its topic is a clinical trial in which all patients were appropriately consented and ethics approval was granted from the University of Rochester Research Subjects Review Board (RSRB# 38795/#44449), as well as from the local ethics committees at each recruiting site.
: There was no specific informed consent sought for this publication because it does not contain any patient data. However, as part of the FOR-DMD clinical trial, full informed consent was obtained before any patient started the study.
: The authors declare that they have no competing interests.
: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.