Morrison, Alexandra http://orcid.org/0000-0003-3525-5030
Oussoren, Esmee
Friedel, Tabea
Cruz, Jordi
Yilmaz, Nalan
Article History
Received: 22 May 2019
Accepted: 22 October 2019
First Online: 14 November 2019
Ethics approval and consent to participate
: No ethics approval was necessary for this study.Informed consent was obtained from all participants. Participant Information Sheets and Consent Forms were translated into local language.
: Not applicable.
: AM declares that she has no competing interests. TF declares that she has no competing interests. JC declares that he has no competing interests. NY declares that she has no competing interests. EO participated in an advisory board for Ultragenyx.